fibromyalgia

[Dreadful Nonsense]

What he's trying to say though Doc (and he's not entirely wrong), is that something is causing the fibromyalgia, and the docs don't know what it is. Fibromyalgia is really just a term developed to describe the symptoms of something that docs can't figure out. It doesn't mean it's not there, but, when a doctor tells you that the problem is Fibromyalgia, it's like answering a question with a question. They can't tell you what causes the pain, or the tender points. They can't tell you WHY we can't sleep right. They can't tell you why the weather screws us up.

Well according to the rheumatiod doc she said it's everything to do with sleep...people that do not sleep properly get ill.....
And Sandy does not sleep...my argument is the 2 mg. lorazapm is not enough...i would like to see a knockout punch 3 times a week...with like nembutol or seconal......I pointed out that a lot of the modern day drugs take longer to metabolise leaving a hang over...the lorazapam doesn't but this other crap did...Nembutol she said is like ver rarely used today...only with like super agitated senior patients in care...

I beg to differ for i know 5 mg of that stuff and wham she is out for the next 12 hours......3 times a week would prolly do the trick.....

 

[Dreadful Nonsense]

This is your response to an actual post? Seriously? His post didn't warrant that.

not worth the bother karrie

 

[karrie]

Well according to the rheumatiod doc she said it's everything to do with sleep...people that do not sleep properly get ill.....
And Sandy does not sleep...my argument is the 2 mg. lorazapm is not enough...i would like to see a knockout punch 3 times a week...with like nembutol or seconal......I pointed out that a lot of the modern day drugs take longer to metabolise leaving a hang over...the lorazapam doesn't but this other crap did...Nembutol she said is like ver rarely used today...only with like super agitated senior patients in care...

I beg to differ for i know 5 mg of that stuff and wham she is out for the next 12 hours......3 times a week would prolly do the trick.....

Yeah, but knocking the person out with drugs doesn't actually bring on the slow wave sleep they need. We don't have meds that do that. You can make them seem to sleep deeper, you can make them stay asleep longer. But you can't bring on the slowwave sleep, the restorative stages that heal our bodies, no matter how hard you try. There's where docs end up really stumped.

 

[Dreadful Nonsense]

Yeah, but knocking the person out with drugs doesn't actually bring on the slow wave sleep they need. We don't have meds that do that. You can make them seem to sleep deeper, you can make them stay asleep longer. But you can't bring on the slowwave sleep, the restorative stages that heal our bodies, no matter how hard you try. There's where docs end up really stumped.

hmmmmm...lol ..
My wife begged me not to ask her doc for barbituates....Twice i brought up the subject and twice i got not the response i wanted lol...
The doctor really did not explain the way you just did. It makes perfect sense... i guess those hormones that do the repair only come out on thier own then.....can't they isolate the hormone in question and like do the ARNIE thing for us?

 

[karrie]

hmmmmm...lol ..
My wife begged me not to ask her doc for barbituates....Twice i brought up the subject and twice i got not the response i wanted lol...
The doctor really did not explain the way you just did. It makes perfect sense... i guess those hormones that do the repair only come out on thier own then.....can't they isolate the hormone in question and like do the ARNIE thing for us?

Well, I'm sure there are scientists working on it. I know that there was once upon a time a tryptophan supplement which claimed to increase regenerative sleep. Killed a bunch of people. Certain chemicals just have disastrous consequences when you start pumping synthesised versions into the system.

 

[Dreadful Nonsense]

Well, I'm sure there are scientists working on it. I know that there was once upon a time a tryptophan supplement which claimed to increase regenerative sleep. Killed a bunch of people. Certain chemicals just have disastrous consequences when you start pumping synthesised versions into the system.

In any case we both agree on the one solid factor...sleep disorder

Firbromaylga was considered this airy fairy concept for one of our GP's here in Toronto...He was ticked off when she was diagnosed it....his words"A lot of my patients are coming out of her office with this diagnoses". He didn't say much else , kept his mouth shut..You got the impression he wasn't happy..then a few months later he was talking to her sympathetically and like this was a real desease.

 

[karrie]

In any case we both agree on the one solid factor...sleep disorder

Firbromaylga was considered this airy fairy concept for one of our GP's here in Toronto...He was ticked off when she was diagnosed it....his words"A lot of my patients are coming out of her office with this diagnoses". He didn't say much else , kept his mouth shut..You got the impression he wasn't happy..then a few months later he was talking to her sympathetically and like this was a real desease.

My doc was frustrated as well when I was diagnosed. Largely because, at the time, all the docs were being fed the depression schpeel.... pain and exhaustion are symptoms of depression, so prescribe anti-d's. They were so brainwashed into it that I HAD to go on the anti-d's before they'd look for any other answers. Only once I was on the anti-d's and still having pain would they even consider that I needed something more than just a handful of pills and a condescending pat on the back. BTW, for anyone who isn't clinically depressed (as I never was), letting docs pop you on meds and screw with your brain chemistry is a recipe for disaster.

When I came back from the rheumatologist with a diagnosis, it was almost as if they didn't believe him. They could NOT let go of the depression idea. I was so glad when I moved and could find a new doc.

 

[Nuggler]

not worth the bother karrie

Good comeback Doc. (Sorry to hijack the thread)

No evidence of yer trollin yet.

Good on ya.

Be nice.........................like me................:lol::lol::lol::lol::lol::lol::lol::lol::lol::lol: OH lord, just peed me pants.

:help:

 

[Dreadful Nonsense]

Good comeback Doc. (Sorry to hijack the thread)

No evidence of yer trollin yet.

Good on ya.

Be nice.........................like me................:lol::lol::lol::lol::lol::lol::lol::lol::lol::lol: OH lord, just peed me pants.

:help:

lol....thanks man...i actually had to edit it though....winkety wink....
I don't think the *bored* (pun) need another round of this.....

i gotta say one thing though........

yer the only guy here that pees his pants during a hijacking......
what kinda terrist r ya?

 

[Cosmo]

I notice a lot of folks here have it. My beloved has it and it has really effected her life on sooo many levels....It took 10 years to get it diagnosed....sleeping pills are her only treatment....

Hi DocDred,
Sorry for being so late on the uptake for this thread but I've been MIA awhile.

First, condolences to both you and your wife. I have fibro as well and it's not just tough on the one who has it, but on the partner as well. Your support probably means more to her than you can know.

JoeSchmoe ... up yers. Folks with fibro have a tough enough time without people like you undermining their diagnosis. You know the old saw about walking a mile in my [FONT=&quot]stiletto[/FONT]s before commenting, dontcha?

Like any other disorder, fibro probably has some underlying cause such as those you mentioned. Bit like heart disease caused by too many big macs. That doesn't negate the result of the disease. Fibro is real and I wouldn't even wish it on someone like you who seems to speak out of the wrong end of their anatomy.:violent1:

There is an interesting site ... fibrohope.org that I go to. "The NFA and Pfizer have partnered on an educational campaign to help raise awareness of fibromyalgia. This campaign is supported through a sponsorship from Pfizer." Despite the drug company being involved it's got good info.

I finally quit whining and just take my drugs. I believed all the crap about narcotics being bad, drugs being bad, etc. etc. etc. and all that happened to me was I got sicker. Now I do what I need to in order to have a relatively normal life. Folks like Joe are just another annoyance.

 

[missile]

Doc; the one who ripped into you was definitely out of line! Sorry about your troubles:-(

 

[lone wolf]

I forgot who DocDred was when I posted to this thread.... if I remembered that he was DITL the Troll I wouldn't have bothered replying. I doubt he has a wife.... but I suppose his imaginary wife could have fibromyalgia.

Whaa???... A troll fixes fibro? Here I thought they only ate billy goats and attacked threads.... hehe

Have but four points found, but the rheumo darned near blasted me through a wall while she was discovering them. Can't take anti inflamatories because they don't er on with heart meds ... so I walk it off as I can. Ouch....

Wolf

 

[darkbeaver]

Cannibis Sativa, liberal applications for pain. Stay away from the big pharma stuff, you can't survive that crap.The pain relief and antiinflamatory qualitys are strain specific, find your strain and keep it with you.

 

[Impetus]

Isn't an Indica strain better for pain relief?
I find it does wonders for the neurological pain.
Last trip to the Compassion Club I picked up some of each (AAA and White Rhino) just to compare.
The White Rhino is an indica and I can just feel it go out and settle down the tingles and pinpricks in my legs and feet. The Sativa (AAA) seems to go right to the head and makes me want to eat.

Some of the members with fibro use Indica.

Muz

Cannibis Sativa, liberal applications for pain. Stay away from the big pharma stuff, you can't survive that crap.The pain relief and antiinflamatory qualitys are strain specific, find your strain and keep it with you.

 

[Cosmo]

Unfortunately I can't do the pot thing. I hate the feeling ... just end up cowering under the covers in a fit of paranoia. Shell is a member of the Compassion Society, though, and she found the "Herer" strain the best. Controls the pain but doesn't knock her on her butt.

I just stick to the narcotics. Ho hum.

 

[Dreadful Nonsense]

I actually suggested to sandy to try pot...thanks muz for the strains and where to get if she ever does wish to give it a try......I wish she would try it...anything at this point of the game to see her live a better quality of life...pain all over the place, her mind is effected by it...she is not fast on the uptake anymore, which to be honest used to cause me angst and i would snap at her..thats the only thing that really bugs me....she has changed as a person, she used to be so quick and alert and on top of everything before me..doc explained it to me......it is hard man....if you only really knew...I have learned a lot ..I love her and will always be there totally for her though....

Her problem stems from sleep disorders....she does not enter deep sleep....i think i posted it about her only once entering it and getting frightened....too wierd....on a side note....She has never been to any doctor since i have known her that has not asked her if she was abused sexually as a child.....she says no..is sure she hasn't....but it is wierd they ALL ask this of her.....

thanks for all the kind concern and comments everyone.....

 

[Unforgiven]

I am starting to worry that people are going to get the wrong idea about pot's abilities.

Isn't an Indica strain better for pain relief?
I find it does wonders for the neurological pain.
Last trip to the Compassion Club I picked up some of each (AAA and White Rhino) just to compare.
The White Rhino is an indica and I can just feel it go out and settle down the tingles and pinpricks in my legs and feet. The Sativa (AAA) seems to go right to the head and makes me want to eat.

Some of the members with fibro use Indica.

Muz

 

[Cosmo]

Interestingly enough, DocDred, people who have these chronic illnesses are way more likely to have been abused. I'll try to dig around for some links on it later.

heh heh ... thought you were talking about me at first since my real name is Sandy too. If she can handle it, pot really is a miracle worker for fibro.

Hats off to you for learning about the disorder. It is tough.

 

[Dreadful Nonsense]

Interestingly enough, DocDred, people who have these chronic illnesses are way more likely to have been abused. I'll try to dig around for some links on it later.

heh heh ... thought you were talking about me at first since my real name is Sandy too. If she can handle it, pot really is a miracle worker for fibro.

Hats off to you for learning about the disorder. It is tough.

ha! another Sandy ...and i liked you right off....go figure!

Real name, real life, cyber life...you sound like me too!!!

hey i never said hi.
Hello, how do you do?( said in my best My Fair Lady voice, i cross dress online ya know!)

 

[Impetus]

How so? The info is all out there...
Muz

I am starting to worry that people are going to get the wrong idea about pot's abilities.