Robin Williams had Lewy Body Dementia...

[personal touch]

I had the joy to work with dementia patients today,it had been a while,i can honestly say i had a few laughs or two with the circumstances and with the patients to,(these patients are not yet in the debilitating state we know is around the corner),my patients are still active and pleasantly confused,what a great day I had.Patients in dementia states can trigger quickly,we had a few minor encounters,but the great thing dementia patients can sometimes be distracted.We have a great enviroment for distraction.
when i look at dementia,I view the condition it as a regressive condition,where the person slowly returns to their infant state.
Born free!

 

[Twila]

I had the joy to work with dementia patients today,it had been a while,i can honestly say i had a few laughs or two with the circumstances and with the patients to,(these patients are not yet in the debilitating state we know is around the corner),my patients are still active and pleasantly confused,what a great day I had.Patients in dementia states can trigger quickly,we had a few minor encounters,but the great thing dementia patients can sometimes be distracted.We have a great enviroment for distraction.
when i look at dementia,I view the condition it as a regressive condition,where the person slowly returns to their infant state.
Born free!

Have you asked if the patients feel the same way?

 

[petros]

Ask your mom. Your third party experiences are enlightening.

 

[Ludlow]

We start out unable to care for ourselves without teeth, bald and sh-tting our pants and end unable to care for ourselves, without teeth, bald and sh-tting our pants.

Full circle.

In our family all the babies had lots of curly black hair.

 

[petros]

In our family all the babies had lots of curly black hair.

But still sh-t their pants....

 

[Twila]

Ask your mom. Your third party experiences are enlightening.

I wasn't expecting you to get anything out of what I post. You just make up what you want people to think and apply it to them. You've shown no ability to put yourself in another persons shoes You have exhibited no empathy or understanding of anyone.

Too bad the question wasn't for you though, eh? Your comment might have been witty otherwise.

For anyone who'd like to know about other people's experience with violence in people with Lewy Body dementia here is a forum with people discussing it.

http://www.lbda.org/community/forum/viewtopic.php?f=2&t=3746

 

[damngrumpy]

Watching it start is very hard been there. I also face the plug scenario. My wife
has COPD and on one occasion ended up with a breathing tube in ICU. At the
point of being stable for a couple of days I was asked about removing the tube
the only air source and turning off the equipment. Here were the options.

1 She could remain hooked up and likely be on the machine forever which would
not be that long really. Forever is relative to circumstance.

2 Remove the tube shut things down if she could get enough breathing on her own
She would recover in time.

3 If she didn't respond they would likely not be able to get the tube back in to save her.

Interesting choices. I did what she would have wanted pull the tubing and take the
chance. She is still with us so life is a gamble for us all everyday
When face to face with that kind of decision you can truly decide what you would do in
your own circumstance. Funny this is I might like to see what is coming for cures first

 

[petros]

I wasn't expecting you to get anything out of what I post. You just make up what you want people to think and apply it to them. You've shown no ability to put yourself in another persons shoes You have exhibited no empathy or understanding of anyone.

Too bad the question wasn't for you though, eh? Your comment might have been witty otherwise.

For anyone who'd like to know about other people's experience with violence in people with Lewy Body dementia here is a forum with people discussing it.

Lewy Body Dementia Association, Inc. - View topic - Extremely aggressive behaviour

Boohoo. Don't bullsh-t. That way you won't get ridden.

 

[Twila]

Boohoo. Don't bullsh-t. That way you won't get ridden.

grow up. Stop making stuff up that you want other people to think so you can jump all over it. This isn't high school.

 

[petros]

Quit BSing and you won't be called on it. Pretty simply solution is it not?

 

[Twila]

Quit BSing and you won't be called on it. Pretty simply solution is it not?

just cause you think it doesn't make it true. and again, grow up. this isn't high school.

 

[personal touch]

Have you asked if the patients feel the same way?

I make a point to try to make my patients day a better one,I love to engage them in fun and laughter,it bothers me to see my patients in turmoil,regardless of the circumstance.

sometimes and most times lately I feel like I work in the humanities.
i think sometimes with the perception of the dementia patient,peoplemay think they are in some type of suffering turmoil state,this may bein the initial state, without a doubt filled with fear upon learning of this diagnosis......,but as the illness progress's,the patients insights becoming severly blunted, disorganized, and pronounced,depending on what part of the brain the handicaps are advanced in.I think the dementia patient express's insight,but it too is disorganized,regressive to be long lived.I am sure dementia patients suffer way less then their families,this is where things become tricky.

 

[Ludlow]

I make a point to try to make my patients day a better one,I love to engage them in fun and laughter,it bothers me to see my patients in turmoil,regardless of the circumstance.

sometimes and most times lately I feel like I work in the humanities.
i think sometimes with the perception of the dementia patient,peoplemay think they are in some type of suffering turmoil state,this may bein the initial state, without a doubt filled with fear upon learning of this diagnosis......,but as the illness progress's,the patients insights becoming severly blunted, disorganized, and pronounced,depending on what part of the brain the handicaps are advanced in.I think the dementia patient express's insight,but it too is disorganized,regressive to be long lived.I am sure dementia patients suffer way less then their families,this is where things become tricky.

my mom died from dementia. When Sam her husband passed away she seemed lost and did not last very long.

 

[Twila]

I make a point to try to make my patients day a better one,I love to engage them in fun and laughter,it bothers me to see my patients in turmoil,regardless of the circumstance.

sometimes and most times lately I feel like I work in the humanities.
i think sometimes with the perception of the dementia patient,peoplemay think they are in some type of suffering turmoil state,this may bein the initial state, without a doubt filled with fear upon learning of this diagnosis......,but as the illness progress's,the patients insights becoming severly blunted, disorganized, and pronounced,depending on what part of the brain the handicaps are advanced in.I think the dementia patient express's insight,but it too is disorganized,regressive to be long lived.I am sure dementia patients suffer way less then their families,this is where things become tricky.

Have you seen the care home in the Netherlands that mimics a real town (I posted the link in an earlier post). There are shops and the "shop workers" are actually nursing staff? The patients have "homes" and there are streets, stores, etc where the patients can continue to live their lives under the guise of independence but they are being cared for 24/7.

The thing that is most inspiring in this care home is the level of agitation, aggression and violence is markedly lower then in care homes that look like care homes. Patients are free to "wander". They require less meds and are healthier and mentally clearer than similarly afflicted patients in regular"" care homes.

I wish North America could do this for our population of dementia sufferers.