fibromyalgia

Unforgiven

Force majeure
May 28, 2007
6,770
137
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How so? The info is all out there...
Muz

Info isn't what it used to be.
A little bit of knowledge in the wrong hands can be a dangerous thing.
There is a tendency for those crusaders on the road to glory to usurp one thing for another use. Often corrupt.

And it's not about what is the truth, it's about what people believe.
Sometimes the truth just doesn't matter.
 

Vereya

Council Member
Apr 20, 2006
2,003
54
48
Tula
Throughout the day I take a maximum of 3 additional endocet. Added to that the car wreck at the end of May which brings twice a week physio which includes accupuncture, stretches, deep massage, chiropractic adjustment, and ultrasound. Which we have to be careful with because I have two steel rods in my back from scoliosis surgeries in the 1970's.

Triedit, I have had the same kind of surgery, fifteen years ago, so we are in the same boat with you here. :-| It's allright most of the time, but sometimes my back is just killing me. Strangely enough, I get especially intense and strong pain when I am nervous about something or upset. Seems to me, that every ailment has got something to do with the nerves. I wonder if it's the same way with you?
 

triedit

inimitable
V--I think there's something about having a foreign body implanted that does that. Seriously. We have this metal that's not really supposed to be there. Who knows what chemical reactions (causing neurotransmitters to fire) those bad boys are causing. Have you considered having yours removed?
 

Vereya

Council Member
Apr 20, 2006
2,003
54
48
Tula
V--I think there's something about having a foreign body implanted that does that. Seriously. We have this metal that's not really supposed to be there. Who knows what chemical reactions (causing neurotransmitters to fire) those bad boys are causing. Have you considered having yours removed?

Actually, I have never really thought about it, but it seems like a scary thing to do. What if the scoliosis will start to progress again, once they are removed? besides, this will be a really difficult surgery, as I understand that there is now some tissue around those rods.
 

triedit

inimitable
If you are over 25, you're likely done growing so the curvature coming back is not an issue. But it is risky surgery--any spinal surgery is.

Mods please allow this...here is a forum that deals only with scoliosis in all its phases. I have learned so very much there, perhaps you will too.

http://www.scoliosis.org/forum/index.php

Also, consider a chiropractor. I grew up thinking I couldnt go to one because of the rods but I have one now who is awesome. If you are in the GTA pm me and I'll give you his number.
 

Twila

Nanah Potato
Mar 26, 2003
14,698
73
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Is Fibromyalgia a autoimmune condition like Rhumatoid arthirtis?
 
May 28, 2007
3,866
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Honour our Fallen
Is Fibromyalgia a autoimmune condition like Rhumatoid arthirtis?

Hmmmm might be....

what i know is there are these fibroid things that interface if you will with the nerves and muscles....they get inflamed forever and misery occurs.....it causes mental problems as well...depression,confusion,slower on the take,......
wierd pains all over the abdomen....these leg jumps....weird feelings like elastic bands being pulled in your legs.....the list is endless it seems
 

triedit

inimitable
Is Fibromyalgia a autoimmune condition like Rhumatoid arthirtis?
Probably, although arthritis developes in the joints. This is more random, soft tissue stuff like the middle of your arm or the middle of your cheek. Its genearlly not associated with movement pain, it's more constant although movement can both aggrivate it and help it. It's actually more similar to Lupus without a rash involvement, although many of us are also sensitive to the sun.
 

Twila

Nanah Potato
Mar 26, 2003
14,698
73
48
The reason I ask is because there are many types of arthritis. Gout being one that is cured by eating correctly. I've taken some medical courses, one being medical terminology. The word Fibromyalgia means fibre muscle pain. Fibro=fibre, my/o= muscle Algia= pain. And it's all sparked a memory of something I'd learned that I can't quit put my finger on right now.....maybe I'll peruse my text books..
 

Unforgiven

Force majeure
May 28, 2007
6,770
137
63
Probably, although arthritis developes in the joints. This is more random, soft tissue stuff like the middle of your arm or the middle of your cheek. Its genearlly not associated with movement pain, it's more constant although movement can both aggrivate it and help it. It's actually more similar to Lupus without a rash involvement, although many of us are also sensitive to the sun.

So how do you get diagnosed for Fibro? I mean obviously you visit your doctor but are there things to bring up or someone else you should see?
 

triedit

inimitable
After the family doc you need to see a rheumatologist to rule out things like Lupus and arthritis. There are some physical tests they can do, but not many. No blood tests that I know of, although there might be an antinuclear antibody test. I get those every year anyway so I don't know if it's part of the diagnosis "machine".

Fibro is usually what they label you when nothing else fits. As Doc mentioned there are 18 points that when pressed cause unreal pain. That's a good indication, even if you don't have all 11 recommended for diagnosis. For me, the diagnosis came when the dna test for lupus came back negative.

You should also have a sleep study if you have chronic pain, snoring, or difficulty sleeping. Many people get relief from all symptoms just from using a CPAP machine while sleeping. That is, until stress or some trauma irritates it again.

The fatigue is frustrating. You get plenty of rest but still feel too exhausted to do anything.

My worst symptom besides pain is the "brain fog". I had just gotten it under control when the car wreck happened and now it's worse than ever. SRI's help, but it's still troublesome. It feels like early onset altzheimers...you forget what you were talking about or forget the name of someone you know well. Just for a few seconds. But it happens ALOT, not like normal people.